Owen was born in 2009 with a short right femur and the right side of his hip not developed properly.

This condition is called Proximal Femoral Focal Deficiency or PFFD for short.

This blog is for Owen's family and friends to follow his progress and help other families who have a
child with PFFD.

Sunday, August 7, 2011

Numerous Trips to Specialists


After traveling to Baltimore to see a specialist when Owen was 3 months old, we learned that his right leg will only grow from the knee down and if we did nothing to correct his condition he would have over a foot difference in his legs.  When he was born he had a 2-½ inch discrepancy and at 21 months we had a 5-inch difference in his legs.

At our visit back to Baltimore when Owen was 16 months old we decided that a prosthetic leg would be the least amount of surgeries and the fastest way to get Owen on the right track.  

One of our biggest fears throughout all of this is – will we make the right choice for Owen?  But we have to have faith and stand behind our choice and know that God is there with us every step of the way.

That is why we have been to Maryland, South Carolina, and Texas in search of the best possible medical treatment for Owen. 

We will have either a RotationPlasty or Symes Amputation surgery around age 3 or 4.   In the mean time he tried a shoe lift (5 inches of foam on the bottom of a tennis shoe) but that was unsuccessful. So now we are currently in the process of fitting Owen for his first prosthetic so he can finally get upright and walking.  He is over 2 years old and still has taking his first steps.  These next few posts will be the 2 week process of his first prosthetic and physical therapy.  Stay tuned.

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