Owen was born in 2009 with a short right femur and the right side of his hip not developed properly.

This condition is called Proximal Femoral Focal Deficiency or PFFD for short.

This blog is for Owen's family and friends to follow his progress and help other families who have a
child with PFFD.

Friday, January 18, 2013

Owen's new wheels for the next 6 weeks...a reclining wheelchair. He loves being able to sit up and stroll around the hospital.

Owen is Free and soo excited! Owen removed both his IVs all by himself about an hour before they scheduled to come in and remove them for him. Owen just had a different plan so he got mad and pulled them out with no tears. So once those were removed they had to come in and take out epidural and catheter. All we can say is thank goodness all his tubes are gone cause he is such a happy camper. They will keep him overnight and continue with pain management. Hopefully by 9 am we should be checking out. The hospital staff has been amazing!!! We are soo blessed that Owen has received the best possible care and in such a kid friendly environment.

We have turned off the epidural and have had our first round of oral pain medicine...so far so good. He is sleeping now. We will alternate Tylenol and Pain medicine every 2 hours. If this seems be good we will go home tomorrow

Another peaceful night of sleeping for Mr. Owen! He had to take one last wagon ride at 10:30 pm before crashing around 11 pm. It was a so nice to have a night with out beeping and nurses coming in every hour...I think we all 3 were able to catch up on some much needed sleep. We are hoping for a more comfortable day for Owen. Yesterday afternoon he became restless and was a little constipated but now that we think we have that under control...we are hoping for a good day :)

Wednesday, January 16, 2013

Friday, January 11, 2013

I just wanted to let everyone know that the surgery is set for January 16th at 9:30am Eastern Standard time. We will leave on Tuesday morning early so that we can get to Lexington in time for Owen to be at Shriners for his pre-op testing by 3:30pm. During pre-op he will have blood work and x-rays, then we can enjoy our evening and maybe even swim at our hotel. Drake will be with us for a couple of days in Lexington so he can check in on his brother then he is off to play with his cousins till we get Owen home and settled. Attached is a picture of Owen's first shoe lift from 18 months old, then his first prosthetic from when he was 2 years old, and his latest prosthetic that he received at age 3. What a journey this has been! Each step has gotten us closer to the surgery day. We have traveled all over visiting doctor after doctor seeking the best medical options for Owen. From Baltimore for lengthening, then South Carolina for a second opinion, which then lead us to Scottish Rite in Dallas to explore Rotation Plasty, and now Lexington for amputation....all I can say is WOW the things parents do to give their children the very best! I truly believe in my heart that we are doing the very best for Owen. This surgery will give him all the opportunities for him to succeed in whatever path he chooses. I am excited to see the man that Owen becomes. He has already blessed our lives so much and he is only 3 years old. He has the sweetest personality, is soo loving, has a contagious laugh, and he can even be a little mischievous (don't let those brown eyes fool you...he knows exactly what he is doing). He is our little "O" that we LOVE soo much! Thank you for all your support, love, and prayers through this journey! We are soo glad you have been apart of this and do not know what we would have done without you. I will do my very best to update this site as much as possible while we are in Lexington. From the bottom of our hearts we Thank You!